At the Center for Rare Disease Therapy, every child diagnosed with a rare disease receives an individualized treatment plan and family-centered care.
Patients may be referred to the Center for Rare Disease Therapy at UPMC Children’s Hospital of Pittsburgh by physicians, by health care organizations, or by themselves.
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We are located in Administrative Office Building, Suite 1308, immediately adjacent to the main Children's Hospital tower.
Clinic Manager: Jodie Vento, MGC, LCGC
Clinic Coordinator: Deanna Steele, MS, LCGC