- Lediant (Revcovi) - Multicenter Registry Study of Revcovi Treatment in ADA-SCID patients
- USIDnet - A Registry of Patients with Primary Immune Deficiency Disorders
- Primary Immune Deficiency Treatment Consortium (PIDTC)
- PIDTC 6903: XCGD Study – Medical record review of and sample collection from female and male carriers of X-CGD to better understand the genetics of this rare disease
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