Nadene Dawn Henderson, MS, LCGC

Henderson has been a lysosomal disease Genetic Counselor and Research Coordinator for multiple clinical trials at the University of Pittsburgh and UPMC Children’s Hospital of Pittsburgh since September 1994. During this time she has coordinated clinical trials, submitted protocols, provided education to subsequent generations of genetics professionals, and worked with many families and individuals with lysosomal storage disorders. She also provided some consulting work for 16 of those years with Genzyme's Rare Disease Registry Program. Ms. Henderson became involved in the field after graduating from the University of Pittsburgh’s Genetic Counseling Program in 1994. Her involvement began with a research project to examine if there was an increased frequency of carriers for Gaucher disease within a subset of the Amish community, but current work includes all lysosomal diseases. Most recently, she became involved in Pennsylvania's newborn screening program for lysosomal diseases when it began in February 2016. Her passion is the long-term coordination of all aspects of research, education, treatment, and management of families impacted with lysosomal storage disorders, as well as the training of future healthcare professionals involved in these families’ care.